Tag Archives: China

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LCQ7: Supporting patients with classic phenylketonuria

     Following is a question by Dr the Hon David Lam and a written reply by the Secretary for Health, Professor Lo Chung-mau, in the Legislative Council today (November 27):

Question:

     Classic phenylketonuria (PKU) is a rare amino acid disorder. Patients with PKU can only consume special formula food and supplements for the whole life, as eating ordinary food will result in serious complications and even death. However, some carers of PKU patients have relayed to me that, as Hong Kong does not produce any special formula food for patients with PKU, these patients can only purchase imported food from individual suppliers, yet the prices for such food products have surged exorbitantly in recent years. For example, the price of a brand’s tinned formula milk powder increased by folds from $93 per standard tin in 2022 to $430 in 2024, while another brand’s formula milk powder can even cost as much as $860‍ per tin with a net weight of 500 grams. It is learnt that, currently, patients in some jurisdictions (e.g. the United Kingdom) are subsidised by their governments for the purchase of special formula food. In this connection, will the Government inform this Council whether it will consider including special nutritional formulas which are essential for PKU patients in the Hospital Authority Drug Formulary, or otherwise subsidising patients for purchasing special formula food and supplements; if it will, of the details; if not, the reasons for that?

Reply:

President,

     In consultation with the Hospital Authority (HA), the reply to the question raised by Dr the Hon David Lam is as follows:

     Classic phenylketonuria (PKU) is a rare but treatable amino acid metabolism disorder, which is an inherited metabolic disorder. To prevent the excessive build-up of phenylalanine in the body, patients with PKU need to take a special nutritionally balanced and low-phenylalanine diet including the use of specified dietary products (e.g. disease specific formula, other supplement products, specially formulated low protein products, etc). Child patients have to limit their intake of high protein food such as general infant formula milk powder, meat and dairy products so that just small and sufficient amount of phenylalanine would be consumed to maintain a healthy body as well as normal growth and development. According to the HA’s records, the number of PKU patients is 21. 

     Where special nutrition and special dietetics products are indicated clinically for relevant patients during their stay in public hospitals, relevant costs are covered by their in-patient fees. As for out-patient services, if patients are prescribed with special nutrition and special dietetics products based on the assessment of clinical teams, they may purchase the relevant items at their own expense in the community. Patients or families with financial difficulties may approach the Medical Social Services Unit of hospitals or clinics for application for Comprehensive Social Security Assistance Scheme or Disability Allowance. For these patients with financial difficulties and unique clinical conditions, medical social workers will also assist in soliciting other financial assistance (e.g. donation) to subsidise their additional nutritional needs. At present, Hong Kong Children’s Hospital also administers fund-raising activities for children suffering from rare diseases to support their relevant expenses.

     The Hospital Authority Drug Formulary (HADF) has been implemented with a view to ensuring equitable access by patients to drugs prescribed based on their needs through standardisation of drug policy and drug utilisation in all public hospitals and clinics. Only registered pharmaceutical products (or commonly known as drugs, which are used for prevention and treatment of diseases) in Hong Kong that are cost effective as well as of proven safety and efficacy are covered by the HADF. It is not appropriate to include in the HADF any food or supplements such as special formula milk powder or special food products that are beyond the scope of drugs. The HA will continue to closely monitor the supply and usage of relevant special nutrition and special dietetics products or nutrition supplements, and maintain communication with suppliers regarding the supply situation for Hong Kong patients to address patients’ needs.  read more

Persons in custody at Shek Pik Prison attain good examination results (with photos)

     â€‹A total of 99 persons in custody (PICs) at Shek Pik Prison (SPP) of the Correctional Services Department (CSD) were presented with certificates at a ceremony today (November 27) in recognition of their study efforts and academic achievements.
      
     In the past year, a total of 230 PICs at SPP passed 381 papers with 221 distinctions and credits in various distance learning courses and public examinations organised by the Hong Kong Metropolitan University (HKMU), the Hong Kong Examinations and Assessment Authority and Caritas Institute of Community Education, covering subjects including Chinese language, English language, mathematics, economics, business finance, business statistics, business administration, Putonghua, accounting and book-keeping. The 99 PICs who were awarded certificates today had passed 149 papers with 109 distinctions and credits. Among them, two PICs were awarded Bachelor’s Degrees in Business Administration, two were awarded Bachelor’s Degrees in General Studies, one was awarded a Bachelor’s Degree in Language and Translation, and two were awarded Associate Degrees in General Studies by the HKMU.
      
     Officiating at the ceremony, the Chairman of the Board of Directors of the Community Synergy for Rehabilitation Association (CSRA), Dr Cook Chiu, said that the CSRA is fully supportive of the rehabilitation work of the CSD, and set up the Community Synergy for Rehabilitation Association – Perseverance Education Fund in November 2022 with the aim of supporting needy PICs to pursue continuing education and vocational training. He encouraged the PICs to seek continuous improvement with perseverance and build a solid foundation for their rehabilitation.
      
     During the ceremony, volunteer tutor and harmonicist Ramiel Leung partnered with PICs to stage a harmonica performance. In addition, singer Jade Kwan, together with a band composed of PICs at SPP, performed music onstage to convey gratitude to their family members as well as community members and organisations that have helped them rehabilitate. 
      
     In the sharing session, a PIC shared his experience in the course of pursuing his studies with perseverance and rehabilitation, and expressed gratitude for his family members’ unwavering support.
      
     Also attending the ceremony were representatives of non-governmental and community organisations, community leaders and family members of the certificate recipients.
      
     Situated on Lantau Island, SPP is a maximum security institution with a capacity of 426 penal places for male adult PICs.

Photo  Photo  Photo  Photo  
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LCQ5: Nurturing foreign language talents

     Following is a question raised by the Hon Benson Luk and a reply by the Acting Secretary for Education, Dr Sze Chun-fai, in the Legislative Council today (November 27):
 
Question:
 
     In 2018, the State President stated at the National Conference on Education that vigorous efforts should be made to nurture international talents proficient in foreign languages and adept at Chinese-foreign negotiations and communications. There are views that as the country’s super connector and super value-adder, as well as the premier international financial centre connecting the country and the Middle East market, Hong Kong needs to nurture a large pool of foreign language talents. In this connection, will the Government inform this Council:
 
(1) when Government officials make overseas visits and when the Government releases videos and hands out publications overseas to promote Hong Kong, whether local mother tongues of the relevant places have been used as the medium of communication; if so, of the details; if not, the reasons for that;
 
(2) as it is learnt that there are a number of language universities in the country, such as Beijing Foreign Studies University, which is approved to teach more than a hundred foreign languages, whether the Government will study allocating more resources to tertiary institutions to strengthen training in foreign languages other than English, or establishing foreign language universities drawing on the models of the Mainland, with a view to nurturing multilingual talents in public and private organisations, so that they can tell the good stories of Hong Kong in different languages; and
 
(3) whether it will study enhancing the existing “biliterate and trilingual” policy by turning it into a “triliterate and quadrilingual” policy?
 
Reply:
 
President,
 
     Hong Kong is a cosmopolitan city. In recent years, various national strategies have even brought about tremendous development opportunities for Hong Kong, which require us to strengthen exchanges and co-operation with the Mainland and overseas regions and countries by capitalising on our advantage of “linkage with our Motherland and close connection to the world”. To enhance our international competitiveness and strengthen our position as an international post-secondary education hub, we have been striving to nurture talents who are biliterate and trilingual, and proficient in other languages.
 
     Having consulted the Commerce and Economic Development Bureau and the Information Services Department (ISD), I would like to reply to the Hon Benson Luk’s questions as follows:
 
(1) Currently, in taking forward overseas promotion work, the overseas Economic and Trade Offices (ETOs) of the Hong Kong Special Administrative Region (HKSAR) Government and Invest Hong Kong (InvestHK) will make appropriate arrangements taking into account the common languages of the relevant places. For instance, apart from the English version of the relevant ETOs’ websites, languages commonly used in the countries/regions under their respective purview are also available, e.g. Japanese, Thai, German, Arabic to facilitate local people in understanding the information disseminated by ETOs. Also, for meetings between officials of the HKSAR Government and local officials/representatives of the political and business sectors and preparation of relevant promotional materials, the ETOs concerned will arrange interpretation and prepare and issue the relevant promotion materials in local languages as appropriate.
 
     In addition, to facilitate investors from around the world to understand the latest information about Hong Kong’s business environment, InvestHK’s website is available in a number of major languages, including simplified Chinese, traditional Chinese, English, Japanese, Spanish, French, Italian, as well as Arabic, which has been newly added. Separately, InvestHK’s promotional videos are mainly in English and Putonghua. Depending on the origin of individual successful case studies, subtitles may be available in the local language. As for InvestHK’s client meetings and promotional materials, Putonghua and simplified Chinese are used on the Mainland, while English and the local language where necessary are used in overseas markets. Interpretation will also be arranged at investment promotion seminars.
 
     On external promotion, the ISD produces a series of creative contents in multiple languages for placement in overseas and Mainland cities through digital and social media platforms, as well as outdoor advertising, in the form of short videos and banner advertisements to tell the good stories of Hong Kong. These creative contents are available in Arabic, Bahasa Indonesia, Dutch, English, French, German, Italian, Japanese, Korean, Malay, Thai, Vietnamese, etc. The ISD also translated and printed the promotional booklet entitled “HK Connect” into foreign languages such as Arabic, Bahasa Indonesia, Malay and Thai for distribution to target recipients at promotional activities during senior officials’ overseas visits.
 
     Moreover, the ISD has held the “Immersive Hong Kong” promotional roving exhibitions in Jakarta, Indonesia; Bangkok, Thailand; Kuala Lumpur, Malaysia; and Guangzhou, China since July 2023. It will also be staged in Dubai, the Middle East next month. In addition to English, the exhibition information is also available in the local languages of each stop to enhance the publicity effect.
 
(2) The eight University Grants Committee (UGC)-funded universities have all along been making flexible use of their resources to offer a wide range of publicly-funded programmes with regard to their respective roles and positioning, as well as providing diversified learning opportunities for students in response to market demands. Learning foreign languages can help students to understand multiculturalism and strengthen their connections with different parts of the world, thereby enhancing their competitiveness in entering the workforce, pursuing further studies or starting their own businesses in the future. University education also aims to encourage students to acquire knowledge and skills in different fields, and nurture the high-calibre talents required by different industries, so as to inject impetus into the development of Hong Kong.
 
     In recent years, the eight UGC-funded universities have offered as many as 12 contemporary foreign languages for learning, including Arabic, French, German, Italian, Japanese, Kiswahili, Korean, Portuguese, Russian, Swedish, Spanish and Thai. They also offer a range of specialised programmes majoring in individual foreign languages or cultures for students who aspire to become professionals in relevant fields in the future. As for students pursuing undergraduate programmes in other areas such as engineering technology, business or social sciences, a number of universities also offer minor options or foreign language courses as free electives for interested students to pursue having regard to their personal aspirations and abilities. In addition, a number of self-financing institutions at present offer post-secondary programmes related to different foreign languages and relevant elective subjects according to market demand.
 
     The above arrangements for major, minor and free electives enable students to study foreign languages having regard to their learning objectives in an appropriate manner. The existing arrangements meet practical needs with flexibility; hence the Government has no plans to set up a foreign language university. Nevertheless, we will continue to encourage the UGC-funded universities to provide students with opportunities to learn foreign languages, and through various avenues, such as student exchange programmes and experiential learning activities, enable students to gain exposure to the cultures of more places, broaden their horizons, seize Hong Kong’s unique advantages, and be better prepared for their future development.
 
(3) Over the years, the Government has been collaborating with the Standing Committee on Language Education and Research, other advisory bodies and stakeholders to enable the Hong Kong people, particularly students and working adults, to become biliterate and trilingual, through sponsoring and implementing various measures using the Language Fund. Moreover, the Education Bureau (EDB) endeavours to develop students’ multilingual competence, enabling them to make life planning based on their own interests, abilities and aspirations, and to connect to the world. Over the years, the EDB has offered “other languages” courses (Note 1) (Category C of the Hong Kong Diploma of Secondary Education Examination) for senior secondary students to study as an elective subject. As announced in the 2024 Policy Address, the EDB will implement a pilot scheme to invite schools to apply for additional resources to provide opportunities for junior secondary students to learn “other languages” (Note 2), in order to facilitate a stronger articulation in their learning of “other languages” as an elective subject at the senior secondary level.
 
     Thank you, President.
 
Note 1: The EDB subsidises schools to offer courses of the six “other languages”, i.e. French, German, Japanese, Korean, Spanish and Urdu, for secondary four to six students.
 
Note 2: Schools can use the funding to offer junior secondary courses of the six designated “other languages” (i.e. French, German, Japanese, Korean, Spanish and Urdu), which are the senior secondary elective subjects. Arabic and Russian could also be considered. read more